EuroLyme initiative

EuroLyme initiative is a collaboration of Lyme disease patient groups.

LymePlus covers the disease caused by all borrelia species, all tick bite infections, linked bacteria, viruses, parasites, and fungi.

The initiative asks innovative research and improved legislation about LymePlus disease, based on respect for European vision on democracy and for innovative research.
It aims to realize concrete plans via participation in the European Union's debates and public consultations.

On November 15 2018, the European Parliament approved the resolution on Lyme disease (borreliosis) 2018/2774(RSP).

In february 2022, Member of European Parliament Frédérique Ries and EuroLyme have jointly drawn 2 texts written questions to the European Commission.

Written question 1: Methods to diagnose Lyme disease (borreliosis) earlier and more effectively
Question PDF
Answer web HTML
Answer PDF

Written question 2: Compliance by Member States with the obligation to report cases of Lyme disease (borreliosis)
Question PDF
Answer web HTML
Answer PDF

An overview of accomplished work is here : Participation in European Union policy.

EuroLyme Plan July 2022 is presenting 3 proposals for the European Parliament :
1 on the revision of the EU General Pharmaceutical Legislation
2 on the revision of the EU Legislation on Blood, Tissues, and Cells
3 on reliability of blood tests including tests showing the end of an active borrelia infection

The engaged groups are :

	Suomen Lyme Borrelioosi ry www.borrelioosi.net Lyme patients in Finland
	Borrelia och TBE föreningen www.borrelia-tbe.se Lyme patients in Sweden
	Lyme Lives Here Hungary - Rusznyák Veronika www.facebook.com/magyar.egyesulete Lyme patients in Hungary

As founder of EuroLyme in Belgium, I wish to start a group for Lyme patients tailored to the rhythm of patients. Nature is a good meeting point for those who adapt their lives to a quiet lifestyle and a slower rhythm.